Monday, November 18, 2013

This is Autism (Erica A. Wise

Written by Erica A. Wise

"This is the week America will fully wake up to the Autism Crisis.
If three million children in America one day went missing--what would we as a country do?"

These are the opening lines of Suzanne Wright's call to action for Autism Speaks policy and action summit in Washington this week.  Later in her call to arms, she says things like "These families are not living."  "This is autism.  Life is lived moment to moment...in despair...in fear of the future."

I want to set the record straight.  Our family is living, our lives are not full of despair, nor do we fear the future.  Life is lived with an appreciation of moment to moment that I wish I could have gotten when I was an anxious twenty something, biting my nails about my own future.  Most of all, my two autistic, unusual kitties are not missing.  If anything they are more present, most definitely here, living life loudly, messily, sometimes joyfully, pretty much like the more typical children of my acquaintance, except maybe sometimes a little more so. 

I'm not going to surround our lives with pretty sparkles.  That loud and messy part is definitely sometimes too loud, too messy.  My kids need supports that most of the other kids can do without and the struggles of each age are often more intense.   Being their parent is a challenging job.  So much of what is difficult though, is dealing with a society that isn't sure how to deal with them.  I won't say our lives are just exactly like the lives of the more typical families around us.  But they are our lives, our busy, hectic, frustrating, interesting, funny lives.  In that way we are just like the millions of other families with kids in this country.

That is the reason to have a national plan, because we are a part of this nation, and we deserve a voice.  We deserve a voice that doesn't believe that the nation would be better served by making sure there aren't more kids like mine.  A voice that that thinks telling the world that we are a burden, a cause for despair, and a scourge or an epidemic is somehow helpful to us.  In case it isn't obvious, it's not helpful.   My children, their parents, and autistic people throughout the nation have plenty to contribute.  Every person has the ability to change the world for the better, autistic or not.  I hope we can support champions who are in favor of finding ways to help every person share their abilities, without this terrible assumption that somehow we can know what that contribution will be, before a child is even grown, before an adult life has been fully lived.

So, to me, saying "This is Autism" is the same as saying "This is our lives".  Autism is children who meow and hiss at me when they are angry.  Autism is a little boy who has a plastic dinosaur for a buddy.  Autism is feeling like red touches your soul.  Autism is knowing that in the future you are going to invent the most awesome thing ever.  Autism is worrying that your children are going to be mad scientists who rule the world.  Autism is thinking they might also be the super-heroes who save the world.  Autism is needing to go into a quiet room to talk to a friend.  Autism is knowing the importance of that friend.  Autism is hearing that far away sound that no one else hears yet, and letting the group know the train is coming. Autism is feeling like you will never see again if the flash bulb goes off. Autism is knowing exactly where all the light switches are, even though you've only been here once before.   Autism is having so much energy you have to just shoot yourself straight up into the air like a rocket.  Autism is feeling so tired that you just need to lie down right here.  Autism is not always understanding what people mean when they say things.  Autism is sometimes understanding just what people mean down underneath everything they are saying.   It's living our lives. For me it's also raising our children.  The real children that we do have, not the ones we imagined might appear, but the kids that are living right here.  Autism is being human, and both the same and a little different than everyone else who is human. 


5 comments:

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  3. I am Sophie from Canada, I once suffered from a terrible and Chronic autism ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years which result to epilepsy, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from autism through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months and two weeks as prescribed by dr williams and i was totally cured of autism within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can visit his blog autismepilepsy.blogspot.com for help

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  4. As a sign of gratitude for how my son was saved from autism, i decided to reach out to those still suffering from this.
    My son suffered autism in the year 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have difficulty with communication, , and he always complain of poor eye contact . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to autism . I never imagined autism has a natural cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months time he was fully okay even up till this moment he is so full of life.autism has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my story

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  5. Doctor Williams Natural Cure to Autism,I have ever prayed to share my testimony so others would read and have a reason to fight on for there sons. I know you receive hundreds of testimonies; I pray mine will be published one day.I was a High School teacher until my retirement from classroom.

    Back when I was a teaching, I prided myself in my excellent memory.my son Having the ability to recall facts, speak eloquently, and mentor others, was all I lived for. my son was having a nice life, life was going fine until one day I noticed that my son memory wasn’t what it used to be. he was struggling to recall and retain facts. This was what he did with ease. he struggled to increase his study time and pace, because he felt he was not doing enough. As the year progress, he discovered that the more he studied, the less he recall. we all thought It was something normal, he had spent part of his life sitting down reading everything on ink and print. As time progressed, symptoms became frequent with other complications. As a result, I visited my doctor who advised I should visit a neurologist for my son proper diagnoses.My visit to a neurologist proved he had what is called classic" autism . Well before them, I have heard of children with autism, but classic" autism wasn’t a familiar word I had associated with autism. I went for further search in the internet; talked to doctors I know and even talked to autism foundations to broaden my knowledge of what my son we be facing.
    There were lots of constraints living with autism. he had to abide with certain do’s and don’ts he wasn’t used to. his autism were getting worst. Phonation and other drugs which are Anti-autism drug were prescribed to try and stop his speech delay, but none proved suitable. Instead his liver reacted badly to the first drugs. The second drug failed to control the autism. he began to feel very dejected and for the first time started to feel depressed.On these autism days of his life, i took care of me son, drove him around and ensures he stayed on his meds.

    I was told by my doctor never to take a single break without him taking his meds. Hell! I obeyed. I don’t want anything to happen to my son. But ironically, these Conventional Medications were killing him base on the side effect. I know they were,but was afraid of stopping it so the condition wont get worst,In desperation, I started visiting neurologists looking for a cure. Because he had stayed on these English medications long enough and he have not gotten a cure except more complications.

    I wanted other natural alternative devoid of side effects created by Phonation and other anti-autism drugs. Well, my search continued until someone suggested Herbs as a better alternative to treatment. But what do I know about Herbs, I am not an Herbalist so I know little about Herbs. I did more findings on various blogs where I saw lots of comment where people shared testimonies’ of being cured from autism , Herbs had cured people diagnosed of autism, so mine son won’t be an issue.I needed to get Herbal medication for my son autism. So I read a lot of blogs where people who shared their testimonies kept mentioning WILLIAMS Anti-Autism Herbal medication. I searched for a blog on Williams didn’t find one. I just followed the email address of Doctor Williams that was shared on these testimonies; I got lucky when I got a reply from Dr. Williams on how to get the medication from his customer service, I followed his instruction, which my son use in less than 1 months, his frequent autism reduced drastically. Within a period of 1 months, he was cured. I went back to my neurologist, where my son was checked up and marked autism free.Long story right… I can’t say all this in 10 lines, but if you are reading this, I want you know that Williams is the main drug for you in the cure for autism. It worked for my son; I believe it will work for you also. for more information on how to get his product you can email Dr Williams on drwilliams098675@gmail.com

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